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| | Author | Messages | |
leefamily
Posts:0
 | | 07/09/2007 9:44 AM |
 Alert | I tried to post to this when the topic was up but had to register first and because they were doing site maintenance I couldn't - ANYHOW this is to the gal that posted wanting to know about LUPRON injections for endo.
PLEASE PLEASE PLEASE DO YOUR RESEARCH!!!!!!!
I say this because my best friend received Lupron injections for endo for a six month time period. Six months after she was finished with the injections and now severly depressed and suicidal, she developed LUPUS.
Please read on Lupus it is a very debilitating disease. She is currently talking to attorneys about filing a law suit against Lupron because they do not list several things about the drug that can go wrong. Please do your research. Look up things like "lupron side effects" She believes the Lupron injections triggered the Lupus and is now permamently disabled from it. In fact, a lot of websites that state the dangers of Lupron have been shut down, a little fishy. The bad thing is that the connection between Lupron and debilitating diseases is never made because you go to the obgyn for lupron and then to the primary care doc for other things. PLEASE PLEASE PLEASE research this and if you have any doubt or uneasiness DO NOT DO IT!!!!
Yes, endo is very painful but Lupus and the slew of other diseases I've read about following Lupron injections are a million trillion times worse!!! | | | |
| | Trajanbear
Posts:88
| | 07/09/2007 6:48 PM |
Alert | Thanks for the warning. I've done a ton of research but don't feel any better about taking it. I've not seen any connections between Lupron and Lupus but I'll definitely look into it.
Thank you thank you thank you for the heads up. I go in for the surgery Wednesday but won't start the injection until 2 weeks later.
I hope your friend is doing well. Lupus is not a friendly disease. | |
The best present ever! A day at the Phoenix Zoo as a Zookeeper. Feeding the giraffs was one of the most exciting parts of the day. | |
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| | twostep23
Posts:1687
| | 07/09/2007 6:49 PM |
Alert | | Wow!! | |
Senior Member
Posts: 4625
Joined: Feb 2006 | |
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| | leefamily
Posts:0
| | 07/09/2007 6:53 PM |
Alert | | I wouldn't say there's a direct link, but I've read a lot about women who experience chronic pain following injections. Be careful too because it caused her to become severly depressed. I hope you get your endo under control. I myself have not been diagnosed with it, but my friend was. Sad thing is the very reason she took lupron injections is to be able to have children, and now she's too afraid of passing lupus on... sad. Also, I saw an advertisement for that research organization that wanted endo patients for a new drug they are testing - perhaps that's an option. Good luck with whatever decision you make and if I can be of any help, please let me know (babysitter, food, anything!!!) | | | |
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| | Trajanbear
Posts:88
| | 07/09/2007 6:56 PM |
Alert | I really appreciate it. I have been looking for a support group for a few years. There never seems to be one in the city where I live. The closest is Tucson.
Most people don't understand the pain isn't just during the cycle. I can no longer exercise and nightly walks with our puppy get pretty bad after about 30 minutes. It's also very taxing, tiring and emotional.
It's nice to have some support out there. Thanks again.
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The best present ever! A day at the Phoenix Zoo as a Zookeeper. Feeding the giraffs was one of the most exciting parts of the day. | |
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| | leefamily
Posts:0
| | 07/09/2007 7:10 PM |
Alert | | Yeah, I remember my girlfriend was visiting from Pittsburgh and she was in so much pain all the time. She had trouble working because sitting was just as painful as running. Have you tried online support groups through like myspace? She joined a lupus one (because lupron did kill the endo!) and it has really helped her a lot. | | | |
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|  | Trajanbear
Posts:88
| | 07/10/2007 5:18 PM |
Alert | <div class='NTForums_Quote'>Posted By leefamily on 07/09/2007 7:10 PM
Yeah, I remember my girlfriend was visiting from Pittsburgh and she was in so much pain all the time. She had trouble working because sitting was just as painful as running. Have you tried online support groups through like myspace? She joined a lupus one (because lupron did kill the endo!) and it has really helped her a lot.</div>
I hadn't thought of an online support group. I really need to get a Myspace account.
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The best present ever! A day at the Phoenix Zoo as a Zookeeper. Feeding the giraffs was one of the most exciting parts of the day. | |
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| | mw
Posts:120
| | 07/10/2007 11:23 PM |
Alert | | i took lupron for almost six months due to endometriosis. i had the endo removed, then it came back and i was having severe pain, so they did the lupron injections. not sure if i can be of any help, but you can email me at melsbels2@yahoo.com if you have ??'s about it or need to talk | |
this time i want a smart president! | |
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| | leefamily
Posts:0
| | 07/11/2007 7:12 AM |
Alert | Hey- Here's a good article on Lupron I found online. I typed "dangers of lupron" and it lists a ton of different pages, but this one was particularlly interesting. I hope you don't feel as though I'm trying to "talk you out of it" by any means. I know how horrible endo is and I know that it becomes really the last alternative. I just worry because I've seen what it can do and if I can at least warn someone to really research it, then I feel like I'm doing my job as a woman. Hope you find this info helpful
LUPRON LAWSUIT IS FILED
By RFD Editor, Nicholas Regush
Five women who claim to have suffered harm from injections of Lupron for treatment of endometriosis are suing the drug’s manufacturer, Tap Pharmaceuticals, in U.S. federal court.
Samuel Bearman of Pensacola, Florida, one of two attorneys for the plaintiffs, told Redflagsdaily.com that the pre-trial discovery process is expected to begin shortly.
The five women claim, for example, that Tap Pharmaceuticals failed to properly test Lupron, failed to warn government agencies, including the FDA, of the results of company testing, failed to warn consumers of the dangers associated with Lupron, concealed the known dangers associated with Lupron, and failed to warn the physicians prescribing Lupron of its known dangers.
Tap Pharmaceuticals has steadfastly maintained over the years that Lupron is safe.
The FDA first approved Lupron in 1985 for treatment of men with advanced prostate cancer, and then approved it for treatment of endometriosis in 1990 and, in 1995, for the pre-operative treatment of anemia resulting from heavy bleeding associated with fibroids.
An estimated 7 million women in the U.S. suffer from endometriosis, a condition in which pieces of the lining of the uterus are found in other parts of the body, especially in the pelvic cavity. These pieces of endometrium respond to the menstrual cycle and bleed. Because the blood cannot escape, it builds up and causes the development of small or large painful cysts.
Lupron is a synthetic hormone that is said to act on this process by suppressing the ovaries and is supposed to temporarily interrupt estrogen output. This creates a drug-induced menopause. The goal of treatment is to shrink any lesions produced via endometriosis.
Many women with endometriosis who have been given Lupron injections have had severe side-effects, including cardiac arrhythmias, dizziness, swelling, chest pain, depression and confusion, bone pain, extreme fatigue, vision loss, high blood pressure, and nausea. Some of the women claim their side-effects last long after treatment is completed.
The plaintiffs in the lawsuit against Tap claim, for example, to have experienced serious injury after Lupron injections, "resulting in pain and suffering, disability, disfigurement, mental anguish, loss of the capacity for enjoyment of life, expense of medical care and treatment, loss of earnings, loss of the ability to earn money."
April 24, 2003
Thanks to redflagsweekly.com
Class members include all persons who purchased any formulation of Lupron Jan 1, 1985 through 12/31/04
Remember we are NOT Doctors and have NO medical training.
This site is like an Encylopedia - there are many pages, many links on many topics.
Support our work with any size DONATION - see left side of any page - for how to donate. You can help raise awareness of CAM.
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| | Trajanbear
Posts:88
| | 07/12/2007 9:53 PM |
Alert | I would do the same thing in your shoes. I am greatful for any and all information. I am very afraid of the drug but just don't know what to do at this point. I had my 4th surgery yesterday and the only next step is total hysterectomy.
This past surgery was the worst. Having pain even through the pain meds. I will look into the Lupron more once I'm able to sit and type. Keep any information you kind find coming. I really appreciate it. | |
The best present ever! A day at the Phoenix Zoo as a Zookeeper. Feeding the giraffs was one of the most exciting parts of the day. | |
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